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Care Services red sunflower bannerPatient Registration blue button Jan_2014

Home Visits

Our Care Services staff of ALS-experienced medical professionals can visit you in your home to provide more information about your disease and support your care management. Examples include helping with education about proper timing of treatments such as feeding tubes, fitting of loaner equipment, use of assistive communication devices, conducting a home safety evaluation or simply seeing how you're doing. There is no cost for a home visit or any of the services we provide to persons and families living with ALS. 

Skype Appointments

We are now offering virtual appointments for patients. Have the conversations you need to, face to face, with our Care Services staff members from the convenience of your own home. All you need is a device equipped with a webcam and Skype, which you can download and use for free at The service is available for a wide range of devices, including computers, tablets/iPads, and SmartPhones.

Support Groups

Orland Park *Caregiver* Support Group
First Wednesday of every month
6:30 - 8:00 PM
Faith United Methodist Church
15101 S 80th Ave, Room 14-16, Orland Park, IL 60462


Orland Park Support Group
Second Thursday of every month
4:30 - 6:00 PM
Faith United Methodist Church
15101 S 80th Ave, Room 14-16, Orland Park, IL 60462

Glenview Support Group
Second Saturday of every month
10:30 AM - 12:00 PM
Contact Joumana Baroody for Location Information: 312-931-7127
1930 Glenview Rd, Glenview, IL 60025


Rush/Chicago Support Group
Third Thursday of every month
1:00 - 2:30 PM
Rush University Medical Center
1725 W Harrison St, Room 1106, Chicago, IL 60612


North Riverside Support Group
Third Saturday of every month
10:30 AM - 12:00 PM
North Riverside Public Library
2400 Desplaines Ave, N. Riverside, IL, 60546


Rockford Support Group
First Saturday following the first Thursday of every month
1:00 PM - 2:30 PM
OSF Saint Anthony Medical Center
5666 East State St, Rockford, IL 61108


 Peoria Support Group
Quarterly meeting dates TBA. Please contact Tony Cook, LPN, Care Services Coordinator, at or 312-257-5434 for more information.

To ensure you are receiving email invitations to our Support Groups, please click the following link to automatically update your email preferences to include "Caregivers, Families, and Persons Living with ALS."


Synapse Biomedical

Information and Educational Materials

The Chapter has an extensive library of educational materials to support the families that we work with. We have a list of community resources and referrals, and free library of books, and DVDs. Our local and National Office websites are also a useful educational tool, and can be visited at:, and

The Virginia Perlow Medical Equipment Lending Program

The Medical Equipment Program offers the evaluation of patients’ needs for an appropriate piece of medical equipment. We have a lending program of specific medical equipment items that are available for those who lack health insurance coverage, have limited coverage, or are experiencing a delay in getting a particular item through their insurance carrier.

The Transportation Grant Program

The Transportation Grant Program assists patients and caregivers with transportation services in our coverage area of Illinois. As ALS progresses and a person is no longer able to drive, transportation becomes a vital part of their well-being. This program helps to reduce expenses associated with transportation.

Professional In-service Presentations

An array of community service providers need to know about ALS and how to help care for someone with the disease. Our Care Services department will gladly speak to home health care providers, nursing homes, emergency response providers, doctors, nurses, or anyone who would like to learn more. 

The ALS Clinic at University of Illinois Medical Center

In August of 2007 we began a partnership with Dr. Julie Rowin from University of Illinois Medical Center to create a monthly ALS Clinic. As a result of forming this partnership, we are reaching more of the ALS population, increasing awareness about ALS, and providing a variety of services needed by those living with ALS. In January of 2013, Dr. Qin Li Jiang became the director of this clinic.

The ALS Clinic functions from a multidisciplinary approach whereby the patient not only has an opportunity to discuss their medical needs with Dr. Qin Li Jiang, but with a comprehensive team of medical professionals that are well versed in ALS. The multidisciplinary clinic team includes a neurologist, physical therapist, occupational therapist, speech and language therapist, respiratory therapist, nutritionist, social worker, coordinating nurse, and chapter staff. The clinic team provides care plans and helps patients in the management of their disease.

The ALS Clinic at The University of Chicago Medical Center

In April of 2009 we began a partnership with Dr. Raymond Roos, the Marjorie and Robert E. Straus Professor of Neurological Science, Director, ALS and Motor Neuron Disease Clinic, Department of Neurology at The University of Chicago Medical Center to create a bi- monthly ALS Clinic. Patients have access to a team of medical professionals including Drs. Betty Soliven and Kourosh Rezania, as well as Dr. Roos to oversee their care using a multidisciplinary approach.

This multidisciplinary approach allows the patient to see a team of medical professionals all in one day within about a two or three hour timeframe. This eliminates the need for making many different appointments with various medical professionals. Most patients attend the ALS Clinic once every 3 months, but depending upon the progression of their illness, a patient may be required to attend the clinic more frequently.

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Social Security Disability Information

For additional information about our Care Services Programs, please contact our Care Services team:

Joumana Baroody, RN, BSN
Director of Care Services

Tony Cook, LPN
Care Services Coordinator

Audrey Scafidi. LPN
Care Services Coordinator

Kellie Branch-Dircks, MSW, LCSW
Social Worker

The ALS Association Greater Chicago Chapter
220 W. Huron St, Suite 4003
Chicago, Illinois 60654
Phone 312-932-0000
Fax 312-268-5277




The ALS Association Greater Chicago Chapter
(312) 932-0000 - 220 West Huron Street - Suite 4003 - Chicago, IL 60654

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