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Every 90 minutes someone is diagnosed with ALS, or Lou Gehrig's Disease, a devastating neuromuscular condition for which there is no known cause or cure. The Greater Chicago Chapter of the ALS Association provides support and resources for ALS patients, their families, and caregivers living in the Greater Chicago area.

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SPOTLIGHTS

Newsletter

Please click here for the latest ALS Chicago Reporter newsletter.    

new “antisense” experimental therapy clinical trial announced

A new experimental therapy using an approach known as antisense, in which a drug is designed to shut down the RNA (Ribonucleic acid) that is responsible for the production of disease-causing proteins, is being prepared for a clinical trial in people with a familial form of ALS later this year.

Read full story about antisense

buffalo bills quarterback trent edwards rallies around the als association

In honor of his well-known high school coach Charlie Wedemeyer, who has ALS, Buffalo Bills quarterback Trent Edwards will soon launch a new program that helps people with ALS and their families each time he leads his team to a touchdown.

Read full story about Buffalo Bills quarterback Trent Edwards

neuralstem receives fda approval to begin first als stem cell trial

Neuralstem, Inc. announced that the U.S. Food and Drug Administration (FDA) has approved its Investigational New Drug (IND) application to commence a Phase I trial to treat Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig’s disease) with its spinal cord stem cells.

Read full story about First ALS Stem Cell Trial

participants needed

Researchers at Penn State College of Medicine are seeking persons with Amyotrophic Lateral Sclerosis (ALS)for a Research Study on Quality of Life.

Click here for more information.     

The University of Illinois at Chicago is conducting a study regarding PEG tube nutrition and respiratory function in ALS. For more information please contact Dr. Julie Rowin at 312-996-4780    

text to defeat als program launches

The ALS Association Greater Chicago Chapter is excited to announce the Text to Defeat ALS inspirational program with Noah benShea.

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Text to Defeat ALS

beyond sports audio podcast: with hannah stanley

On June 14th Hannah Stanley discusses the deadly disease ALS commonly known as Lou Gehrigs Disease, and the effect it has...

Hear the Podcast here.

the als association's greater chicago chapter recognizes local musician and his wife for their efforts in battling lou gehrig's disease

Eddie Esparza, 50, has had ALS (amyotrophic lateral sclerosis) for more than three years. Commonly referred to as Lou Gehrig’s Disease, ALS usually has a survival rate of two to five years from the time of diagnosis.

Read the full story

new gene mutation discovery by als association consortium is major research breakthrough

In one of the most significant breakthroughs in the recent history of ALS research, a consortium of scientists organized and funded by The ALS Association has discovered a new gene, ALS6 (Fused in Sarcoma), responsible for about 5 percent of the cases of inherited ALS. The discovery will provide important clues to the causes of inherited ALS, which accounts for 10 percent of all cases, and sporadic ALS, which occurs in individuals with no family history of the disease and accounts for the other 90 percent of cases diagnosed.

Read full story about ALS gene mutation discovery

PATIENT SERVICES

the virginia perlow medical equipment program

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EVENTS

2009 bank of america chicago marathon

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October 11th

Click here for more information or to register!

For more information please contact Ariana Etter at (312) 932-0000 or ariana@alsachicago.org

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