Ice Bucket Challenge Progress

 

Resources for Neurologists

The ALS Association Greater Chicago Chapter works to ensure that neurology professionals are in the know about our organization and the programs and services we offer free of charge to Persons Living with ALS, their families, caregivers and healthcare team. 

Practice Parameter information can be found here.

The National ALS Registry

We encourage every Person Living with ALS to register with the National ALS Registry. The National ALS Registry may be the single largest ALS research project ever created. It is designed to identify ALS cases from throughout the United States. The Registry is collecting critical information about the disease that may improve care for people with ALS and help us learn what causes the disease, how it can be treated and even prevented.

Learn more about the National ALS Registry today, and find out how this research can help, including by informing people living with ALS about new and ongoing clinical trials. Visit http://registry.alsa.org for more info.

ALS Association Greater Chicago Chapter Care Services

We invite you to learn about the Care Services (below) that we are available to provide free of charge to ALS patients. Once your patient with our chapter, the appropriate Care Services Coordinator will contact him/her. Please note that patients must have a confirmed diagnosis of ALS to be eligible for services. If official diagnosis or second opinion is needed, appointments are available through our ALS Multidisciplinary Clinics. 

 

Chapter Care Services banner Jan_2014 Patient Registration blue button Jan_2014
Care photo Symposium Care Services Header Statement (myriad-mint)

 

 

ALS Multidisciplinary Clinic
 

Care Management Program

  • Care Management Liaison 
  • Home Visits and Virtual Home Visits
  • Disease Specific Education
  • Resources and Services for:
    • Persons Living with ALS and Their Families
    • Caregivers
    • Military Veterans Living with ALS
    • Neurologists
  • Support and Fellowship Groups

Learn more about the Care Management Program here.


UICMC Clinic Team PNG

ALS Clinic Photo 2014

 

ALS Multidisciplinary Clinics Program

The ALS Multidisciplinary Clinic model provides high-quality care along with access to the latest treatments for persons living with Amyotrophic Lateral Sclerosis (ALS). An ALS Multidisciplinary Clinic brings together physicians, pharmacists, occupational and speech therapists, nutritionists, social workers, and home palliative care staff that can provide comprehensive, specialized, sensitive care that addresses all of these needs in one place at one time. Research suggests that patients who receive treatment at an ALS Multidisciplinary Clinic live longer and have a higher quality of life.

Our ALS Multidisciplinary Clinic Partners:

  • Center of Excellence University of Chicago Medical Center
  • Center of Excellence University of Illinois Health & Sciences Systems
  • Recognized ALS Clinic Rush
  • Recognized ALS Clinic Hines VA
  • Recognized ALS Clinic Rockford Systems Brain & Spine Center

Symposium Bed Demo
 

Adaptive Equipment Lending Program

The Adaptive Equipment Lending Program consists of mobility, communication and quality-of-life items. We are grateful for the generosity of many whom have donated equipment to our chapter as well as the monies raised through our Walk to Defeat ALS programs which allow us to invest in equipment such as:

  • Portable Stair Lifters
  • Transport Chairs
  • Motorized Chairs
  • Chair Lifts
  • Accessibility Items

Assistive Technology 1
 

Assistive Technology Program

  • Low- and High-Tech Communication Devices
  • Speech Language Pathologist Services

Care and More Program presentation
 

Educational Program

Educational Programs about ALS for persons living with ALS, their families, the general community and healthcare professionals

  • In-Services (Educational programs about ALS presented to home health care providers, nursing homes, emergency response providers, doctors, nurses or anyone who would life to learn more)
  • Educational & Scientific Symposium
  • Webinars
Terrie
 

Respite Care Grant Program

The ALS Association Greater Chicago Chapter is proud to announce the new Respite Care Grant Program, made possible with funding from the Walk to Defeat ALS, the Run to Defeat ALS and the ALS Ice Bucket Challenge, along with individual support from donors who are committed to providing respite for the caregivers who give selflessly with courage, patience and love.

To learn more about the Respite Care Grant Program eligibility requirements and application process, please contact a member of the Care Services Team at 312.932.0000.

National Information:

ALS Association Research Program

ALS Advocacy & Public Policy

  Care Services Newsletter Button  Patient and Caregiver Resources

 

 National Registry (small) symposium-logo-2015   Walk Logo 2013

 

Care Services Team