What We Do
Since 1985, through our Translational Research Advancing Therapies for ALS (TREAT ALS™) program, The ALS Association has funded more than $99 million in research and clinical management projects. This unrelenting focus has resulted in some of the greatest ALS research discoveries to date.
We’re presently funding close to 100 active research projects, selected through a peer review process involving top ALS scientists.
From the earliest stages, The ALS Association has recognized novel approaches that have led to significant ALS research findings, including:
Worldwide Comprehensive Approach
Changing Landscape of ALS
The severity of ALS, the lack of effective treatments, the significant progress made in ALS research as well as the identification of targets that make it more tractable to develop therapies for ALS have all resulted in the increased interest in ALS in the industry sector.
ALS is linked to other neurodegenerative diseases like Alzheimer’s and Parkinson’s. Increased understanding of one disease is likely to have major benefits in understanding the others.
To maximize results, The Association channels our funding, made possible through the generous support of donors, into global research projects focused on six tightly-related areas:
Supporting Projects and People
The Association is proud to administer The Milton Safenowitz Post-Doctoral Fellowship for ALS Research, which is the only post-doctoral fellowship for ALS research. In addition, The ALS Association’s Sheila Essey Award, the premier ALS award, recognizes achievement in research.
Spirit of Collaboration and Leadership
The Association’s network plays a lead role in advocating for increased public and private support of ALS research and public policy initiatives that responds to the needs of people with ALS. Our organization’s public policy efforts in Washington, D.C. have raised the profile of ALS at the White House, among members of Congress, and within federal agencies, including the National Institutes of Health, Centers for Medicare and Medicaid Services, Food and Drug Administration, Department of Defense, Department of Veterans Affairs, Social Security Administration, and Centers for Disease Control and Prevention.
24-Month Medicare Waiver
National ALS Registry
The ALS Association helps patients and families cope with the day to day challenges of living with ALS by providing information, resources, and referrals to many sources, including a wide variety of community services.
The Association’s Walk to Defeat ALS®, is held in numerous cities in the fall and spring across the nation by The Association’s nationwide network of chapters. Since the debut of the Walk in 2000, the event has raised more than $223 million. More than 100,000 people with ALS, their friends, families, and the corporate community come together in support of this nationwide effort.
Each month, The Association’s National Office serves more than 1,200 ALS patients and their families. Our chapters nationwide collectively serve thousands more.
Our nationwide network of ALS Association Certified Centers of ExcellenceSM provide state-of-the-art, multi-disciplinary ALS care and services in a supportive atmosphere with an emphasis on hope and quality of life. To become certified as one of these centers of excellence, an ALS clinic must achieve national prominence, meet rigorous clinical care standards, and pass a comprehensive site inspection.
Public Education & Awareness
Through public outreach, media relations, social media and the Internet, The Association continually raises awareness about ALS and the search for a cure. On average, each month 250,000 viewers visit our website, a vital source of information for those battling ALS and for people looking for the latest news and information about the disease. The ALS Association’s magazine, Vision, is mailed and distributed online, reaching an estimated readership of 360,000. The Association has achieved expanded awareness and support of ALS issues through relationships with other organizations such as Major and Minor League Baseball, and through effective interaction with the nation’s news media.