Persons living with ALS, their family members, friends and caregivers are welcome to attend the support groups. The groups are an opportunity to meet others, learn about new information and resources, and provide or receive support and encouragement. Guest speakers attend some of our supports groups, and talk about their area of expertise as it relates to individuals living with ALS.
RSVPs are highly recommended. You may RSVP through our Calendar of Events or by contacting a member of the Care Services Team. For more information, contact your Care Services Coordinator or the Chapter team member listed with each group below.
COVID-19 Update: Until further notice, all support groups will be held virtually-only. Please find video conferencing information below and thank you for your understanding.
ALS and FTD Support Group for Caregivers:
Frontotemporal dementia (FTD) is a term used to describe a group of brain disorders which affect the frontal and temporal areas of the brain. These areas are generally responsible for personality, behavior, language, speech, and sometimes movement, depending on which areas of the brain are affected. Some symptoms of FTD can be detected in up to 50% of ALS patients. If your loved one with ALS has received a diagnosis of FTD, then we are here to support, guide, and provide you with information and advice on managing the daily challenges of this unique combination. For questions regarding the program, please reach out to Kellie Branch-Dircks, MSW, LCSW, at 309-696-7184 or firstname.lastname@example.org.
Second Tuesday | 6:00 pm - 7:30 pm
Video Call-In: zoom.us/j/82819561607
Call-In: 312-626-6799, Meeting ID: 82819561607
Always Loved & Supported Bereavement Support Group:
This is a specialized program to support those who have lost a loved one to ALS. The focus will be on helping those bereaved to cope with their loneliness, how to understand their new roles, and healing ways to manage their emotional pain. For questions regarding the program, please reach out to Jennifer Beckman, LCSW, CSW-G, 309-261-7052 or email@example.com.
Fourth Wednesday | 7:00 pm - 8:30 pm
Video Call-In: zoom.us/j/87643709415
Call-In: 312 626 6799, Meeting ID: 876 4370 9415
Familial ALS Positive Support Group:
Most of the time ALS is not inherited. About 10% of cases are considered “familial ALS” (FALS). You have tested positive the familial ALS gene-now what? You likely have questions, fears, confusion, or you may feel numb. Due to the uniqueness of ALS, feeling understood may be difficult. This group will provide compassion and acceptance, education, give individuals the opportunity to learn from each other, and open the way for social and intellectual interaction between affected individuals, guest speakers, and identified resources. For questions regarding the program, please reach out to Joumana Baroody, RN, BSN, at 312-931-7127 or firstname.lastname@example.org.
Second Monday | 6:00 pm - 7:30 pm
Video Call-In: zoom.us/j/88488955633
Call-In: 312-626-6799, Meeting ID: 88488955633
Spanish Language Support Group:
Fourth Saturday | 10:30 am - 12:00 pm
Video Call-In: zoom.us/j/82832198966
Call-In: 312-626-6799, Meeting ID: 82832198966, Password: 892819
For more information or to RSVP: email@example.com | 312-931-7127
Grupo de apoyo virtual in Espanol:
Cada cuarto sábado del mes. Horario: 10:30-12:00
Unirse con audio y vídeo desde una computadora, tableta o teléfono: zoom.us/j/82832198966
Para unirse a este grupo por teléfono con audio solamente: 312-626-6799, ID para la reunión : 82832198966, Clave: 892819
Para obtener más información o para RSVP: firstname.lastname@example.org | 312-931-7127
Together is Better Caregiver Support Group:
A virtual group for current and past ALS caregivers specially designed to address the unique needs of those caring for someone with ALS. The purpose of this group is for sharing information, insight, advice and encouragement in a safe space. For questions regarding the program, please reach out to Kellie Branch-Dircks, MSW, LCSW, at 309-696-7184 or email@example.com.
Second Wednesday | 7:00 pm – 8:30 pm
Video Call-In: zoom.us/j/84843146208
Call-In: 312-626-6799, Meeting ID: 84843146208
Go to Calendar
“The monthly meetings are a good way to meet people facing the same challenges. At the group, you gain real-life answers to questions you have or problems to solve. It helps to hear other's perspectives on the dilemma, ALS, you are all facing. Meeting in person helps you to see, physically, the progression of the disease and to prepare you for what may come. You feel like you are part of a team (that you never wanted to be on) that offers insight, often to things you haven't thought of. The encouragement all around is so needed! It provides an opportunity to let the tears flow and to laugh the absurdities!
As a patient (PALS) and caregivers (CALS), we are so grateful to the ALS Association and the services they are providing to us at a very difficult time.”
-Ginny Stocker, Jan DeForge, and Joni Long; Support Group Members