Patient and Caregiver Education Center - The ALS Association Greater Chicago Chapter

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Devices for Patients

We find exemplary online videos that can educate Patients and Caregivers about the variety of equipment options that may increase the quality of life for those living with ALS. Patients will typically require different equipment in the varying stages of ALS, and every Patient’s needs are unique. These links will help you learn more about the variety of devices commonly used by Patients of ALS.

Feeding Tube (video)

Airway Clearance

The Vest Airway Clearance System (video)

Cough Assist (video)

Breath Stacking (video)

Drug Trials and Registries

Centers for Disease Control's National ALS Registry

ClinicalTrials.gov: a registry of federally and privately supported clinical trials

Nuedexta

Rilutek

ALS - National & International Organizations

The ALS Association

ALS Society of Canada

American Academy of Neurology

Dana Alliance for Brain Initiatives

MND Care (Australia)

Muscular Dystrophy Association

National Institute of Neurological Disorders and Stroke

National Organization for Rare Diseases (NORD)

World Federation of Neurology

World Federation of Neurology's ALSUntangled Program

ALS - Independent Organizations

The ALS Hope Foundation

ALS Therapy Development Institute (ALSTDI)

Matt White Cure ALS Foundation

Project A.L.S.

Ride for Life

Spastic Paraplegia Foundation

The War on ALS - The Blazeman Foundation for ALS, Inc.

We think it's important for you to have a portal for all things related to ALS patient care. If you have a source to contribute to this portal of external resources, please tell us.