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Register today for the next ALS Roundtable Teleseries.

ALS Roundtable Teleseries

Presented by Mitsubishi Tanabe Pharma America

Launched in 2020 as a virtual extension of our educational offerings, this quarterly webinar covers a variety of ALS-related topics ranging from the latest in worldwide research, to advice and updates from ALS care experts.  

The webinars feature presentations by invited guests and staff followed by a Q&A session.  Please consider registering via Zoom for an upcoming ALS Roundtable Teleseries or watch previous webinar recordings below.  
 
For questions about this program, contact Joumana Baroody, RN, BSN, Director of Care Services at joumana@alsachicago.org or 312-932-0000.

Watch Full Recordings  Watch Recording Clips 

 
 

Registration Open Now: Research Happenings in the ALS Association Greater Chicago Chapter Certified Treatment Centers of Excellence

Saturday, May 15, 2021, 1:00-2:30 pm

The ALS Association Greater Chicago Chapter invites you to join us for the fifth installment of our virtual ALS Roundtable Teleseries. Experts from across the local Certified Treatment Centers of Excellence will share with us their latest in research. Following the presentation, our speakers will be available for a Q&A session with attendees. Download & share the agenda here.

Presentations and Speakers:

  • Getting to a Diagnosis Faster: Intermuscular Coherence and ALS
    Naoum Issa, MD, PhD, Assistant Professor, Department of Neurology, University of Chicago
  • Learning from Our Patients to Develop New Treatments for ALS
    Diana Mnatsakanova, MD, Assistant Professor, Department of Neurology, UIC
  • Update on ALS Clinical Trials in Chicago
    Kourosh Rezania, MD Associate Professor of Neurology, University of Chicago
  • Remotely Supervised Non-Invasive Brain Stimulation for Slowing Disease Progression in ALS
    Sangeetha Madhavan PT, PhD, Associate Professor, Physical Therapy, UIC

You will need to register via Zoom in advance for this meeting; click HERE to register today!

For questions or more information, please contact Joumana Baroody, RN, BSN, Director of Care Services at joumana@alsachicago.org.

Register

 

 

Frontotemporal Degeneration in ALS: What is FTD and How do we Care for it?

Saturday, February 20, 2021, 1:00-2:30 pm

The ALS Association Greater Chicago Chapter presents a Roundtable Teleseries on Fronto-Temporal Degeneration in ALS, including discussion on its clinical manifestation, diagnosis, clinical management and the available resources, locally and nationally. View and print a copy of the agenda here.

Speakers: 

  • James Mastrianni, MD, PhD, Director, The Memory Center, University of Chicago Medicine
  • Tessa Garcia McEwen, AM, LSW, The Memory Center, University of Chicago Medicine
  • Raymond Roos, MD, ALS Association Certified Treatment Center of Excellence ALS Multidisciplinary Clinic Director, University of Chicago Medicine

For questions or more information, please contact Joumana Baroody, RN, BSN, Director of Care Services at joumana@alsachicago.org. To learn more about The Memory Center, visit thememorycenter.uchicago.edu.

 

Legal Planning for Living with ALS - the Good, the Bad, and the Necessary

Saturday, December 5, 2020, 1:00-2:30 pm 

When you or a loved one are diagnosed with a chronic medical condition, not only do you need to prepare medically, you need to prepare legally. This session will address important topics such as Powers of Attorney, Trusts and Wills. What legal options are available in planning and paying for your long-term care, and how can Medicare, Medicaid, long-term care insurance, and personal care contracts maximize your quality of life?

Speaker Kathryn Casey, CELA, is one of only a few Certified Elder Law Attorneys in Illinois. She has practiced exclusively in elder law since 2004. Her practice focuses on long term care planning, estate planning, special needs planning, Medicaid planning and applications, and probate and trust administration. She devotes a substantial portion of her time to helping families plan for the care of a loved one with a chronic care need. Katie represents her clients with a continuity of care that extends from the creation of a long-term care plan through the execution, implementation, and administration of that plan.

 

What's New in ALS Therapy Development -- Healy ALS Platform Trials Update and ALS Research

 

Saturday, August 15, 2020

Guest Merit Cudkowicz, MD – Neurologist l Clinical Researcher, Mass General Chief Neurology Department, Sean M. Healy & AMG Center for ALS, Director, Neurological Clinical Research Institute, Director shares What's New in ALS Therapy Development: Update on ALS Treatments, Genetic Approaches and Trials.

Dr. Kuldip Dave, Vice President, Research, The ALS Association, provides the ALS Association's Update on ALS Research. 

The conversation was moderated by Raymond Roos, MD - The ALS Association Certified Treatment Center of Excellence - ALS Multidisciplinary Clinic Director and includes a Q&A portion where the speakers answer your ALS research questions. 

COVID-19: Impact on ALS

 

Saturday, June 4, 2020

The first ALS Roundtable Teleseries focused specifically on COVID-related issues faced by individuals living with ALS. Topics included:

ALS Care During the Pandemic | Octavia Kincaid, MD - ALS Association ALS Multidisciplinary Clinic Director, NorthShore
COVID 19, ALS, and Breathing
| Sara Mirza, MD, MS - ALS Association Multidisciplinary Clinic, Rush University Medical Center
Well-Being During the Pandemic | Erin Zahradnik, MD - Department of Psychiatry, University of Chicago Medicine
What Do Worms Have to Do With ALS? | Raymond Roos, MD - ALS Association Certified Treatement Center of Excellence ALS Multidisciplinary Clinic Director, University of Chicago, Medicine
ALS Clinial Trials and the Healy Platform | Koroush Rezania, MD - University of Chicago Medicine, ALS Association Certified Treatment Center of Excellence ALS Multidisciplinary Clinic
Q & A | Roundtable Discussion Wrap Up and Thank You l Joumana Baroody