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Virtual Attendance
The 2013 Advocacy Day and Public Policy Conference
starts May 8, 2013. Once again, this year we are pleased to offer live
video coverage of several important conference sessions to those at
home. If you are unable to make it to DC, tune
into our
ALS Association's Facebook page or
LiveStream Channel to watch the following sessions:
Wednesday, May 8:
- 3:00 – 4:15 pm Eastern: Welcome
Remarks/Government Research Session, including presentations about the
National ALS Registry and the Department of Defense’s ALS Research
Program.
- 6:30 – 8:00 pm Eastern: ALSA Rally Dinner with keynote speakers and award presentations.
Friday, May 10:
- 9:30 – 11:00 am Eastern: ALSA Research
Session will cover The ALS Association’s TREAT ALS program, presented by
our Chief Scientist, Dr. Lucie Bruijn.
- 11:15 am – 12:30 pm Eastern: FDA Session will discuss what the FDA’s role in the drug development and approval process.
- 1:15 – 2:30 pm Eastern: ALS Clinical Trials Session includes presentations from companies working to find a treatment for ALS.
- 2:45 – 4:30 pm Eastern: Myths and Facts
about ALS will feature Dr. Richard Bedlack from Duke University
discussing his ALS Untangled program.
Follow us on Twitter @ALSPublicPolicy to stay informed and learn what you can do to make a difference from
home. We encourage you to join the conversation by using our conference
hashtag #ALSA13
2012 Advocacy Conference Produces Results!
More than 900 ALS Advocates. Nearly 90 people with
ALS. Over 20 military veterans with ALS. One goal: to urge Congress to
step up the fight for a treatment and cure. That was the scene at The
ALS Association's 2012 National ALS Advocacy Day and Public Policy
Conference held in Washington, DC May 13-15. Click here to read the full report.
>> Thank you to everyone who made last year's National ALS Advocacy Day a success!
Purchase photos from the 2011 National Advocacy Day
http://scottfoto.zenfolio.com/f60445946
Password is Gehrig (case sensitive)
Click here to read highlights from the 2010 National ALS Advocacy Day and Public Policy Conference
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