ALS Ice Bucket Challenge Progress
  • Sign up
  • |
  • Login
  • |
  • Find local services
  • |
  • |


Familial ALS Positive Support Group

Monday, June 13, 2022
6:00 PM - 7:30 PM
Repeat on the second Monday of the month until 12/31/2022
Zoom Meeting

Familial ALS Positive Support Group

Most of the time ALS is not inherited. About 10% of cases is inherited and is considered “Familial ALS” (FALS). Due to the uniqueness of FALS, feeling understood may be difficult. This group was developed for people who share these experiences:

  • You have tested positive for the genetic mutation
  • You think you may be a carrier of the ALS gene but have not been tested
  • You have FALS with symptoms and family members who worry for themselves

This group will provide compassion and acceptance, education, give individuals the opportunity to learn from each other, and open the way for social and intellectual interaction between affected individuals, guest speakers, and identified resources.

For questions regarding the program, please reach out to Joumana Baroody, RN, BSN, at 312-931-7127 or

Second Monday | 6:00 pm - 7:30 pm
Video Call-In:
Call-In: 312-626-6799, Meeting ID: 88488955633
Password: 523089



This event does not require an RSVP.